Annual Reports
Adira's yearly accounting of what was learned, what was funded, and what the work meant to the people most impacted.
Listening, Learning, Acting, Reporting
Each year, Adira published an impact report documenting the work, the spending, the people reached, and the lessons learned. The reports were written for grantees, donors, board members, and people living with neurodegenerative diseases. Together they form a record of how Adira's model evolved over time.
2020 Impact Report
Inaugural year. The pandemic response.
dira's first full year of operations coincided with the COVID-19 pandemic. The 2020 Impact Report documents how Adira pivoted to a Fast-Track Response, launched the Pervasive Needs Grants program with 12 Round 1 grantees, and invested in demonstration projects in caregiving, navigation, and story collection.
Highlights from 2020:
$390,000 invested in grants, demonstration projects, and research
500,000 people impacted through funded work
17 funded investments across the year
12 Round 1 grantees named in April 2020 ($100,000 awarded)
5 Round 2 grantees named in Fall 2020 (funds distributed in 2021)
Three demonstration projects launched: Caregiver Resource Clearinghouse (Take Care Community with NAC), Changing the Narrative Through Stories (StoryCorps), Network Mapping Phase One (VirginiaNavigator)
2021 Impact Report
The year the model scaled.
Adira's 2021 work expanded the model in every direction: more rounds of listening, more partners, more demonstration projects, and the largest foundation grant in Adira's history. The 2021 Impact Report documents Round 2 grantee outcomes, the launch of Round 3 priorities (simplifying clinical research, preparing for threats to livelihood, thriving again in common pursuits), and the start of the Rural Project funded by Bristol Myers Squibb Foundation.
Highlights from 2021:
$455,995 total spent across grants and operating activities
500,000+ people impacted through Adira-funded work
17 funded investments to date
$941,009 in donations received, 80.5 percent from foundations
$750,000 grant from Bristol Myers Squibb Foundation for the Rural Project (Adira's largest foundation grant)
Round 2 grant outcomes: 2,800 people directly served, 40,000+ reached overall
Demonstration projects continued and expanded: Take Care Community, VirginiaNavigator Network Map, Life After Work (HDSA), StoryCorps, Quality of Life research
A Note About 2022
Adira wound down operations in late 2022. A formal 2022 impact report was not published. The Transformative Fund report, the ND Congress Pilot Outcomes Report, and the Lessons Learned: Demonstration Projects document collectively serve as Adira's final accounting. They are available on the Grant Reports and Background Research pages.
The Adira Archive: One-Pagers
A short shelf of documents that explained Adira in its own words, preserved as they were.
Adira At A Glance: the two-page overview of the mission, model, and approach to change.
Working for the Common Good: the one-page case for uniting five diseases under one effort.
How to Help Adira's Mission: the ways supporters could take part.
Core Values: the one-page statement of what guided the work.
Adira Initiatives: the two-page summary of programs and partnerships.